If your child is referred to us, we will contact you directly.
Before your appointment
We will send you details of the first appointment.
The assessment process
The appointment may may take place as a video call or face-to-face at the Evelina London Children’s Hospital.
Our team of complex motor disorders experts will then begin the assessment process to see if your child is suitable for the intrathecal baclofen pump or deep brain stimulator system. We look at things like your child's level of motor skills, disability, quality of life and independence skills. We may also need to carry out further tests, such as MRI scans or genetic testing.
We will work closely with you and your child throughout the assessment process to set clear goals, and talk through the implications of surgery.
If your child has surgery
If it's decided to go ahead with neurosurgery for your child, they will have the operation at Evelina London Children’s Hospital (DBS) or at King's College Hospital (ITB).
Following surgery at King’s College Hospital, your child will be transferred to the Evelina London Children’s Hospital.
After the operation
We aim to see your child several times in the first year after their operation, and usually 6 monthly thereafter, although this can vary depending on your child's condition.
We work closely with your local healthcare services and therapists to make sure that you and your family get the help and support you need.
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