This page lists leaflets and other useful resources used by our department.
Useful websites
Sickle Cell Society – charity providing help and support for people affected by sickle cell disorders and their carers.
NHS Sickle Cell and Thalassaemia Screening Programme – the website of this national screening programme includes information about sickle cell disease and thalassaemia and useful resources.
Patient information leaflets
Each leaflet is reviewed at least every three years to make sure it is kept up to date.
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- This leaflet provides help and advice for parents regarding antibiotics, vaccinations and travel for children with sickle cell disease.
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- This leaflet offers more information about bedwetting in children with sickle cell disease (SCD), including why it is more common amongst children with SCD and what you can do to help.
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- This leaflet explains about bone marrow transplant for children and young people with sickle cell disease.
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- Information leaflet for parents and carers about their child having a simple (top-up) blood transfusion.
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- Information leaflet for parents and carers about their child having an exchange blood transfusion.
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- Information for families about the medication hydroxycarbamide.
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- This leaflet provides you with information about using your Desferal infusors.
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- Information about helping a child with sickle cell disease to manage their pain
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- This leaflet is for parents and carers of children and young people with priapism. It contains answers to common questions about stuttering and acute priapism such as what can trigger it, how to manage it and when to seek medical help.
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- This leaflet provides information on the specialist and comprehensive care service for children and adolescents in Sout East London who are born with these inherited disorders.
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- This leaflet is about psychological support to children and young people who are living with sickle cell disease (SCD) and thalassaemia, as well as support to their families/carers.
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- Information about the transition service for young people with sickle cell disease.
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- Information about Thalassemia disease
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- This leaflet aims to give you an overview of transcranial Doppler scanning, including what it is, why your child may need it, and how it can help. It is designed for parents of children with sickle cell disease (SCD).