This page lists leaflets produced or used by our department. Each leaflet is reviewed at least every three years to make sure it is kept up to date.
- Description
- Information for parents and carers of babies with Pierre Robin sequence about how having a nasopharyngeal airway can support their breathing, what you'll need to do to manage their NPA and how this might impact day to day life.
- Description
- Information about your child's ABG surgery including what you will need to do before the operation and how to prepare, what will happen afterwards, eating and drinking, and how to care for your child. You can also find the team's contact details for questions or support.
- Description
- Information about the treatment a baby needs to prepare for surgery on a facial cleft.
- Description
- This leaflet explains why speech and language therapy is very important after a baby's surgery, and gives advice and tips on how to help them develop their speech.
- Description
- This leaflet explains more about velopharyngeal dysfunction (VPD) and provides general guidance for parents/carers.
Useful websites
The Cleft Lip and Palate Association (CLAPA) is a national charity supporting people and families affected by cleft lip or palate in the UK.
Changing Faces support adults and children with facial disfigurements.
The Cleft Registry and Audit Network (CRANE) collects information about all children born with cleft lip and palate in England, Wales and Northern Ireland.
The Cleft Collective investigates the biological and environmental causes of cleft, the best treatments for cleft and the psychological impact of cleft on those affected and their families.
Max Appeal's mission is to ensure that every person with 22q11.2 deletion lives an independent and prosperous a life as possible.